Population-based biobank participants’ preferences for receiving genetic test results
نویسندگان
چکیده
منابع مشابه
Communicating with biobank participants: preferences for receiving and providing updates to researchers.
BACKGROUND Research biobanks collect biologic samples and health information. Previous work shows that biobank participants desire general study updates, but preferences about the method or frequency of these communications have not been explored. Thus, we surveyed participants in a long-standing research biobank. METHODS Eligible participants were drawn from a study of patients with personal...
متن کاملBiobank participants’ preferences for research updates: Tailoring communication services
Data and sample donation from diverse populations is critical for research findings to have a broad impact. The goal of this study is to better understand study participant attitudes and preferences for updates on biobank-related research activities. We also hope to understand if there are differences in these topics between demographic groups. In this analysis of 51 survey respondents, we foun...
متن کاملPatient Preferences for Receiving Reports of Test Results.
INTRODUCTION The general public's preferences for modes of communication (other than in-person communication) for medical test results were investigated. We hypothesized that patients would prefer a variety of methods to receive common tests results (blood cholesterol and colonoscopy) compared with genetics test results. METHODS This study was a cross-sectional survey. RESULTS A total of 40...
متن کاملRe: Patient Preferences for Receiving Reports of Test Results.
and primary care. J Am Board FamMed 2015;28(Suppl 1):S63– 72. 2. Kathol RG, Degruy F, Rollman BL. Value-based financially sustainable behavioral health components in patientcentered medical homes. Ann Fam Med 2014;12: 172–5. 3. Peek CJ; National Integration Advisory Council. Lexicon for behavioral health and primary care integration: concepts and definitions developed by expert consensus. AHRQ ...
متن کاملHow Geisinger made the case for an institutional duty to return genomic results to biobank participants
To return or not to return the results of genomics research: that has been the question at the crux of an ongoing debate spawned by the increasingly rapid evolution of genomics. Like many debates, this one arises from conflicting perspectives on broader concerns: for example, the purported distinction between research and patient care, the relationship between health care institutions and the c...
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ژورنال
عنوان ژورنال: Journal of Human Genetics
سال: 2017
ISSN: 1434-5161,1435-232X
DOI: 10.1038/jhg.2017.81